Today has been a challenging day with Reese. We’ve had many, many challenging days over the course of his 4 years, and now we may know why. Reese was recently diagnosed with Sensory Processing Disorder (or Sensory Integration Disorder). Three weeks ago he started going to therapy for this disorder twice a week and we expect it to continue for about a year. If you want to learn more about SPD, there’s more info than you could ever want here.
Basically, Reese’s therapy aims to get the two hemispheres of his brain working together, and to improve fine and gross motor skills. We just got our homework this week and we’ve already been working on it. Some things we’ve been doing include playing tug of war, playing catch, walking like a crab, jumping on his bed (He LOVES that he’s allowed to do this now. I think it’s time for a small trampoline.), rolling him up like a burrito in a blanket, etc.
I’m hopeful this therapy will dramatically change Reese’s behavior, but I’m also struggling with knowing that it will take close to a year to see big changes. It’s not easy getting Reese to and from his therapy sessions (the center is 30 minutes away), all while taking care of a baby and my father, who is dying and needs a great deal of my time. My dad is battling an awful, awful disease that is stealing his ability to walk and talk. As if that weren’t enough, George’s dad is battling dementia. George is smack dab in the middle of his exhausting summer schedule, and we rarely have time to talk, and never have alone time. Life is a bit overwhelming right now, but we are trusting God will be faithful to us in the future, just as He has been faithful to us in the past.
When people at church ask us how we’re doing, I often reply “good” or “fine” without even thinking. George is quick to inform them that I’m lying, that we’re not doing so well. And it’s true. Life is incredibly complex and painful at the moment. We ask for your prayers as we deal with the challenges that God has allowed in our lives. We don’t know why He has given us these specific difficulties, but we also know that God is not withholding good from us. These words give me hope:
“So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.” (2 Corinthians 4:16-18 ESV)
I did not intend to delve into all of this when I sat down to write this post, but this is an honest look at The Deines Family right now. There are tears, and anger, and stress, and tantrums (not just from the little ones either). But there is also hope, which makes me think of this:
“Therefore, since we have been justified by faith, we have peace with God through our Lord Jesus Christ. Through him we have also obtained access by faith into this grace in which we stand, and we rejoice in hope of the glory of God. Not only that, but we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not put us to shame, because God’s love has been poured into our hearts through the Holy Spirit who has been given to us. (Romans 5:1-5 ESV)
So if you ask us how we’re doing, we’re not good or fine, but we have hope that we will be even better than good or fine – someday.